"You are braver than you believe, stronger than you seem, and smarter than you think," Christopher Robin to Winnie the Pooh
If your child was recently were diagnosed with apraxia, you may be saying “What is that?” or maybe you have an idea, but not sure how apraxia will affect your child.
Start here http://www.apraxia-kids.org/guides/family-start-guide/introduction/ CASANA is the leading resource on all things apraxia. They have a tremendous library and information about apraxia.
If you are in the Chicagoland area, come back here! We want to help, so much so that we formed our own LOCAL nonprofit called The Apraxia Connection. http://www.theapraxiaconnection.org/ We host events and have networks around Chicagoland so you can connect with people in your own neighborhood. We also do grant programs twice a year to help offset the high cost of therapies and therapeutic tools. Right now we have parent reps in the western, northern and southern suburbs.
Are you on Facebook? We have two pages, one is public, https://www.facebook.com/apraxiacnxn/ and one that is private https://www.facebook.com/groups/128017803903484/
Also, sign up to join our mailing list HERE
Then, take it one step at a time. Make sure your child is getting the right kind of therapy by the right therapist both in school, through Early Intervention or privately. Apraxia is relatively unknown and the only real way for success is by intensive, repetitive therapies of short duration by a trained therapist. Find ways to help your child at home and part of your child’s day. Reach out to our group for recommended therapists or doctors in your area or anything you are facing. There are some parents further down this road that would be happy to talk with you, give you support or just listen to you vent. We get it! And we are here for you. It is going to be OK!